Meet Emily: Turning Tragedy into Triumph
By: Emily Levy
Right before my sophomore year of college I was diagnosed with Chronic Neurological Lyme disease and co-infections. I went from being a carefree college student to someone who had to manage anywhere between 15 and 52 pills, supplements, and intravenous medications to push through a PICC line (Peripherally Inserted Central Catheter).
My friends call me a “Professional Patient” because my pharmacist knows me by name, I am always going to my next doctor’s appointment, and organizing my weekly medication takes an hour every Sunday. But if you look me in the eye, I look like a healthy 22-year-old who is just trying to manage her meds and a growing young business, Mighty Well… welcome to the life of a spoonie*
I went from being a carefree college student to someone who had to manage anywhere between 15 and 52 pills.
I found it difficult to manage taking all of these medications, my classes, business meetings, doctors appointments, and frequent trips to the pharmacy.
Then a friend told me about Medisafe and it instantly made my life so much easier. Before, I had to set six different alarms on my phone, and they would often go off in class, and to say the least, my classmates, and definitely my professors, did not appreciate it.
With Medisafe I was able to keep track of all of my different medication and even learn about the medications I was taking, instead of spending even more time at the pharmacy. It was also peace of mind for my mom, since she was a hour and a half drive away and she was hesitant to let me go back to school with a PICC line and all of my medications. But with the app, she was notified when I didn’t take my medication. She could let me go off and be a college student, while still looking after me from home.
For me, Medisafe is my alarm in the morning, my medical diary, and the best place for me to learn more about my ever changing cycle of medication.
Two and a half years later, I am still using Medisafe every day, twice a day.
This month, I entered 29 medications and supplements, and I was really excited to be able to content as I started on a new oral medication protocol for Chronic Lyme disease. Now that I have graduated school, Medisafe is coming with me into my transition into adulthood.
Now, I can now focus more time on running Mighty Well, and less time worrying about, “did I remember to take my Gabapentin?” or “which does am I on?”
…Excuse me while I go take my medication.
*spoonie: what chronic illness patients call themselves. Usually refers to young people who have invisible chronic illness.